• An international research team, based at the Neuromuscular Centre at Copenhagen University, is developing a McArdle-specific symptom rating scale to better capture patients’ experiences, track changes in symptoms, and evaluate responses to future treatments.
• Your input is important! 
• If you have a diagnosis of McArdle Disease, please take part in this anonymous, 20-minute survey.
• Help advance McArdle research by participating and sharing! 
• Survey closes March 1, 2027.

AGSD–UK has announced that the 2027 walking courses in Wales will be held in Eryri (Snowdonia).
• The base will be Snowdon Lodge in Tremadoc, which has hosted the courses several times in the past.
• The course for Adults (over 18s) will be held over 30 July to 5 August. 
• The Young People's course (children with a parent/guardian and young people up to age 25) will be held over 6 to 12 August.
• More details on AGSD-UK website very soon.
• Bookings open in December.

AGSD–UK has published its Spring edition of “Glisten” magazine. This has several articles specific to muscle GSDs. T
• The McArdle’s Experience – walking courses.
• Welcome to Dr Chiara Pizzamiglio, new clinical lead at the national McArdle disease service.
• Retirement of Dr Richard Godfrey, exercise physiologist with the McArdle’s  clinic.
• Gina’s McArdle’s journey – website information led to a diagnosis.
• How we monitor McArdle’s research.